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Conference Program

• 13 June 2009
• 14 June 2009
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     The event is a logical continuation of the very successful 1st, 2nd and 3rd Eastern European Conferences on Rare Diseases and Orphan Drugs, organized in 2005, 2006 and 2008. This year, the conference is supported and co-funded by a grant from the European Union, in the framework of the Public Health Programme. The official patron of the event is the First Lady of Bulgaria - Mrs. Zorka Parvanova.

     The general objective of the conference is to present rare diseases as a common issue of all policies at national/EU level requiring integrated approach by all stakeholders.

     Rare diseases are a common issue of all policies at national/EU level and cover variety of aspects: science, medicine, industry, finance, health care policy, social policy. Different groups of people are involved and good coordination and cooperation between those groups are the guarantee for successful practice in the area of rare diseases which is a challenge of the contemporary United Europe.

     The 4th Eastern European Conference for Rare Diseases and Orphan Drugs is a continued action in the field of rare diseases aimed to improve knowledge, facilitate the access of the EEC to information on these diseases and add value to the public health knowledge. The conference will become an Eastern European unified stage where all stakeholders involved in the area of rare disease will meet and manifest their good will to integrative approach toward the objective of rare diseases.